"We Must Labour to Be Beautiful"

“To be born woman is to know—

Although they do not talk of it at school—

That we must labour to be beautiful”

--Adam’s Curse, William Butler Yeats

When Yeats wakes me up at 6:30 am on a Sunday, I have to acknowledge that—even though nothing here is really all that original, and as usual it’s too long…but it woke me up this morning. So here goes.

In the last week or so I have had many striking encounters with beauty in the midst of lots of not beautiful. The mind-numbing context of our family’s daily realities can’t be denied, and I hate referencing it so often here (and I leave out an awful lot), but it truly covers every aspect of every day of our lives like a blanket of deep snow, cold and painful. Still, to paraphrase Superchick, there is beauty in pain.

Not that any of these things are PRETTY. Nothing about pediatric oncology or its effects on a family are PRETTY. But the warrior children I know are beautiful, 1000%.

Oh, the difference between pretty and beautiful. As a teen, like so many other teens, I so desperately wanted to be pretty , in those days LOooooooong before Zoey Deschanel made “adorkable” even a concept. Back then, it was just dorky. Meh. Today, kids are relentlessly bombarded with plastic representations of “pretty”—I get so irritated with the tv shows that reinforce the impression that ALL 7th graders have fabulous wardrobes and perfect hair and makeup—the pressure is worse now than ever. And even us older folk are constantly shown “real” people who are desperately aiming for pretty all the time through endless pursuits of botox and bigger bosoms and bedazzling.

( thanks to Kathy & Michelle who inspired that burst of alliteration) 

Don’t get me wrong; I love fashion, I haven’t been naturally brunette in 10 years, and hey, if you want to de-wrinkle via injections, go for it—but it’s not the key to happiness or the way we as women have to be defined. Now that I am old (and wrinkly, it’s true), I know that pretty ain’t gonna happen, and that’s ok, because really, does it matter? But maybe I can ”labour to be beautiful”… the real kind of beautiful…

BEAUTY is so deep, and so broad in scope. Beauty is powerful. Not to diss the Bible (I am so not dissing the Bible), but TRUE beauty isn’t fleeting. Beauty really does come from within. Beauty is mighty.

A week or so ago I read about a beautiful baby, a baby named   Pearl Joy Brown  who has a rare, unpronounceable disorder that may very well cut her life short. The fact that she survived to be born is something of a miracle, and the miracle of her life only makes her more beautiful. I was so struck with her beauty and her parents’ story of choosing hope in the face of overwhelmingly grim statistics—not an unrealistic hope of miraculous cure, not a denial of how dark some of their days are, or how precarious Pearl’s life is, but a hope that love and the inherent dignity of every human life would prevail no matter WHAT the medical outcome for Pearl. I shared Pearl’s story with my students as we talked about ethics and life issues in class…and how honoring the humanity of every child, healthy or no, special needs or no, is always beautiful, even as some days it is painful and brutally hard .

With some of the materials we covered in class this week, I also remembered again the intense beauty of Mother Teresa—that teeny tiny Albanian nun whose ministry of love transformed (and continues to transform ) the lives of so many people around the world. Mother Teresa is beautiful because of her words and ideas and her work, her love in the midst of the spiritual desert that no one knew of in her lifetime. I only got to see Mother Teresa once in my life, and even as a teen, I knew as soon as I saw her that I was in the presence of a saint, someone whose generosity of spirit and CHOICE to love changed the world. She literally had an aura of beauty and quiet power, she radiated love. 25 years later, I have not forgotten what that was like, to experience being in her presence, even from afar…

And yesterday…I saw pictures of a friend, glamorous, gorgeous photos of a friend who after years of battling the same medical demons with her daughter that we fight with our daughter (and with significant other complications), has had to enter her own battle with cancer.

SAY WHAT, WILLIS??
Yes, THAT was a moment in which God heard a lot of unprintables from me. Multi-syllabic combinations of extremely unprintable words used as every part of speech. I used to teach grammar, trust me, I hit Every. Part. Of. Speech.

Anyway, my friend is through chemo, and her teen daughter, an extremely talented photographer, took these pictures…

The most beautiful, breathtaking pictures of a woman I have seen in a long time.  And this is only one of a half dozen equally amazing shots.




photo credit Allie Broeniman.
Yes, her momma is gorgeous, and Allie has mad skillz.


Pure beauty on digital film. A beautiful woman who HAS “labored to be beautiful”—not by putting on makeup (although her makeup looks great), not by finding a wig (she doesn’t need one, she rocks bald like nobody’s business), but by LIVING. By just embracing the miracle of life each day as it comes.
These powerful images of grace, and humor, and grit, and toughness ARE beautiful in the traditional sense—she looks fabulous—but they are SO DEEP. This beauty pours out of my friend from every…um, pore. These are victory shots, because these photos show a woman who has triumphed in this moment over extreme adversity, with the love of her family, the support of her friends, and the grace of God.

You may have heard the roar—she is woman, and these photos celebrate the genuine beauty of what that means. Dang, I am blessed to be her friend.

In these days where I feel mentally like a shriveled crabby crone (think Miracle Max’s wife from Princess Bride—that’s what I feel like), I have to try and reach for the beauty that we get each day. Every day, every chance to take another breath—beauty. I have to draw inspiration from these examples of beauty and figure out how to channel that EVERY DAY.

It’s a labour (yes, with the extra u—it is way more than a labor without a u to embrace the beauty in each day), that is for sure. Now to figure out how to do it…beauty isn't passive, it's active...it's decisions and choices and living each day.

And THAT is what woke me up too early on a Sunday morning. The End...or really...another beginning...

Broken but Unbowed

Humpty Dumpty Sat on a Wall
Humpty Dumpty had a great fall.

All the king’s horses and all the king’s men

Couldn’t put Humpty Dumpty back together again.



But really, would you ask a horse to fix something you broke? Does that seem reasonable in any set of circumstances? I mean, they don’t even have fingers, just hooves.

Pondering broken things today.

I don’t like broken things. Who does? Well, with the exception of piñatas. Those are more fun broken…although an argument could be made that piñatas are even nicer when they are intact, all colorful and papery and full of the promise of delights. Sometimes when you break one you realize that there’s only a bargain candy mix inside, full of generic brand hard candy and stale tootsie rolls. Ew.

This week we’ve faced a few broken things here, some big, some small, and I’m left wondering how one fixes the unfixable—or really, how do you make peace with the unfixable?

This isn’t really a rhetorical question.

In taking down our Christmas tree, one of my favorite ornaments got broken, the only real ornament disaster we had this year, aside from the $1 craft store sculpey Santa that the dog ate…and the Rutgers R I had made for my spouse one year (also eaten by the dog) . The ornament that broke was a Chilean nativity, a tiny clay ornament that crashed down when one of my children barreled past the tree while we were un-Christmasafying things.

yeah, no roof for His head is right. Meh.

 

Of course I peacefully said, “that is ok, child, do not worry about breaking one of mommy’s very special nativity collection ornaments”. Of course that is what I said.

Excuse me one moment while I find a fire extinguisher to put out my flaming trousers. Ahem.

I know I can probably super glue it. Maybe. I will try, but it makes me so sad to see the little pieces all over. Definitely NOT calling a king’s horse for this one.

Over the last few weeks and months I have also realized (again) that trust, once broken, is nearly impossible to repair, especially if the breaker of trust doesn’t seem to give a flying wahoozie about making amends. This weighs quite heavily on me these days, because in some cases this realization carries a weight of personal responsibility on its broken back. I can’t quite figure out how to make peace with this—as much as I am a snarky cynic, I do trust people, or I want to, and then smackaroni and cheese ends up all over my trusting expectations. Sigh.

And when I have a responsibility for the way someone knows how to act, it is heartbreaking when trust is broken and broken and broken again and again. How do you even begin to make peace with what you cannot fix?

And finally, in our scary horror film parallel universe, the Desperate Valley of Onco-land, we learned again this week that brain tumors cause damage. NEWSFLASH! Ok, to clarify, when tumors grow catastrophically after years of stability, they can still find new parts of the brain to hurt. Still…NEWSFLASH?



When you are in crisis mode, ie Stop the Tumors From Growing! mode, other issues kind of fade to the background. It is only in the relative quiet of stability-in-progress that these issues have room to hiss at us.

Many parts of the brain, once broken, can’t be fixed.

This is a sobering reality, one that sinks in during the hours AFTER the initial meetings full of reports and bell curves and diagrams and percentiles and doctors soberly saying things like "this can't really be compensated for", meetings that follow other meetings where the delicate balance of brain chemistry is always at the forefront of discussion.


The report is intimidating even before it comes out of the envelope. Double meh.

There are strategies, and techniques, and certain things that can help address the broken parts, but some things just can’t be compensated for--as per sober doctor in super cool tweed suit.

That thud you heard was me getting smacked upside the head by reality.

So yes, this is unfixable—but countering that reality in a cloud of neon animal print and an obsession with American Idol is the reality of a kid who is, without a doubt, “one tough cookie”. She isn’t defined by statistics or percentiles or reports or even by my fears. She is the fix to  her own unfixable, in a lot of ways.

The obstacles are real. The struggles ahead, no joke. But I have to try and draw some hope from the reality that my kid IS a tough cookie. She doesn’t need kings and their horses or men to get her through—what she NEEDS, I can try to give her (or advocate--er, nag, demand-- for other people to give her)—love, support, and some extra heavy duty reinforced wings for flying.

I may not be able to keep her from falling and falling as she tries to stay on the wall with her peers…but I can keep helping her back up, I can make the wall sturdier and wider. So much of what she faces is unfixable, and I have to make peace with that (again. Yes, again.) But unlike broken trust, or even a broken ornament, the unfixable here just leads to another path. We just have to figure out what that path is, what the best way is, and then try to ease on down the road with a song and some super glue.

Who knows, maybe once the king’s horses and men realized they couldn’t put Humpty Dumpty back together they just made a giant omelet or something. There is always a solution, even if it’s not the one anybody anticipated. I have to find hope in this.

Although now I’m a little bit craving an omelet…

Just Another Pic on the Wall

still standing! ish...

So the 3 Kings have come with their presents, and Valentine’s Day decorations are popping up in stores large and small. Most of our post-Christmas returns have been made (except for one sweater that the saleslady convinced my spouse to EXCHANGE instead of return…I guess he’ll be going back to Sears, the sweater still doesn’t fit quite right), and even the mega-stash of cookies is down to a manageable 4 Tupperware.

But my house still looks like Christmas.

Santa Claus REALLY comes to town at our house.

Ok, so it’s January. And yes, the prickle-fall of the tree is starting to become noticeable, I know that this weekend the tree and most of the Nativity sets might have to get put away. But my wall of Christmas cards is going nowhere.

And not just because the wall is kind of structurally important, I mean the cards fun-tacked to the wall are staying.

There is something about seeing all those smiling faces that makes me happy. So many of the cards this year are casual snapshots or collages of family pics. Ours certainly was, mostly because I couldn’t get all 3 kids and dog to look in the same direction in any single picture. I love seeing these moments in the lives of people we hardly ever get to see.

To quote that Master of Verbiage, Billy Crystal," You Look Mahvelous!"

I have mentioned our shrunken social circle before (like shrunken heads but not grotesque, just unusually small), between family moving away and friends moving on and our own post-brain-tumor reclusiveness combined with kids getting older and thus busier, we are like Hermits of Suburbia. So getting those cards full of pictures of people we never get to see is a joy.

Some folks on the wall are family far away, some of whom we haven’t seen in years, but we  always vow that We Will Get Together With This Year! Some are old friends from college and before, with kids galore that all look like mini-versions of their parents. Those cards are cool. Some are friends we have only briefly met through brain tumor or NF work. Pics from the beach, on Santa’s lap, on trips or in the yard…the lovely crowdedness of the wall just makes me happy on these gray January days.

I know, too, that this isn’t REALLY like having contact with people…my wall o’ cards is reminiscent of the concept of facebook “friends”, the 400 people you allegedly are close to. But you know, those facebook friends (ok, not hundreds, I admit there are folks on the friend list who are more connections within the support communities we lurk in than friends), a lot of those facebook friends ARE real friends, people I know are there for us at any hour of the day or night (the benefit of having friends in other time zones, it’s always daytime somewhere!). So my card wall is maybe only a point of connection, but it makes me inordinately happy…like a little “hey, we didn’t forget you, and you didn’t forget us, even if we never see each other! Huzzah!”

That said, I do have some guilt, as I realize that my mental card list never fully translated into my ACTUAL MAILED card list. I have about 5 people I feel awful that I never actually MAILED THE DARN CARDS TO, I don’t know what happened, I seriously still have those cards here—to Deedy, and our Lake George friends, and other bt/nf friends…sigh. I am sorry. Maybe I will wite-out the “Merry Christmas” and put “Happy Groundhog’s Day” on our cards and mail them in a few weeks.


ok,  I figured out the issue I was having with photo uploading.
So  behold, a picture of Wite Out!

Heck, if I did that on the wall…just taped over the holiday greetings with seasonally appropriate woohoos, that crowd could keep smiling at me all year, right? ;)

So thanks, card sending folks, there is particular joy each time we add another pic to the wall…for in each of those we feel a little hooray from each of you. And the wall of the Hermitage is looking pretty snazzy.

 

 

 

2013: Of Pinterest and Pollock

2013. Whoa. Cue Momentous Music or whatever seems appropriate for the dawning of a new year.

Ok, the dawning of a New Year Camiolo-style, aka 4 days later than the ACTUAL dawning of the New Year, with some Appert-style worrying about not having started on time thrown in.

I am determined (not resolved, that would be doomed to failure) to get my rear in gear on the blog front and actually keep writing this year. I have some things planned…

I know, it’s been a month…but Advent and chemo and tragedy in Connecticut and school and cookies and trees and family love and family avoidance and stomach bug collectively conspired to leave me wordless.

I so aspire to be all Pinteresty, all lovely little thumbnails of creativity in tidy rows of inspiration.

(imagine lines of lovely things here, all ice cream sodas and hand-batiked saris and shelving for powder rooms made out of antique farm equipment and little girl dresses woven from vintage grosgrain ribbon. Pretty, right? Enjoy the tranquil beauty...)

Ok, come on back now.
Unfortunately, most days my brain feels like this, all Jackson Pollocky:

Jackson Pollock was the Man.  (from ibiblio.org)

So maybe in 2013 I will just try to go with the Pollock-like flow.

Ok, I know I won’t. I know I will still try endlessly to get my life, my brain, my world into neat Pinteresty lines and soft-lit photos. But maybe this year I can try to be ok with the Jackson Pollock (who honestly I do love), and celebrate that that is just how it is in my head.

One of the best things I ever read comes from Gretchen Rubin’s The Happiness Project. She talks about resolving to Be Gretchen…that is, to just be ok with being who she is. She lives in NYC and does NOT spend her days munching on exotic cuisine or wandering through galleries and all that NYC has to offer, and she felt unsettled by her lack of metropolitan-ness, but finally realized that it was OK TO BE GRETCHEN, a homebody who loves her neighborhood and is generally satisfied to stay close to home with her husband and kids. Not only is it ok, it makes her happy, and as such becomes an important life principle.

Maybe this year I can try to get PAST pondering that insight to that point of being ok with NOT being Aretha Franklin (ok, that is going to be hard), ok with NOT being outgoing or organized or full of chutzpah, with loving fashion but generally ending up in yoga pants and a t-shirt. As a side idea, maybe I can really MAKE TIME for those things that I love, even if they are not huge or earth shattering, things like painting or visiting historic sites or just going for a walk. MAYBE if I spend less time bewailing my un-Martha-Stewartness and just be my neurotic, creative self, the year will be be happier in spite of the Medical Elephant that is hogging our beat-up couch.

How great would it be for my kids to have a mom who isn’t always trying to be a better version of someone else?



except Aretha. It would still be cool
to have your mom be Aretha.

So while I still feel a little bit like 2013 is a freezing cold pool that I only want to get into one toe at a time (or, more accurately, kind of just want to stare at from the warmth of a beach chair), I do have some thought that maybe, one step at a time, and with some special things planned (happy anticipation is awesomely therapeutic), we can keep moving forward.

Heck, maybe eventually I will actually join Pinterest and line up Jackson Pollock images I like. Hah!

So Happy New year, friends…and  anybody else have any New Year Determinations? Random love of Jackson Pollock? A beach chair?

Giving Thanks

So it has been a year. Not just “a” year, but “A” year, the kind of year that we will likely look back on and shudder about, and wonder about, and hopefully remember at all. Stress is a powerful amnesiac.

Anyway, here are 10 somewhat ridiculous and otherwise kinds of things I am thankful for this year.

10. I am not a turkey.

Really, on Thanksgiving that is a reasonable reason for gratitude.

9. I have teeth.

Yes, I like chewing. That is why I am not a smoothie fan, I so like to chew. And at Thanksgiving there are SO MANY tasty chewable things.

8. I am not vegan or vegetarian or on a low carb diet.

None of these are the end of the world, but I am grateful on this feasting day that I am omnivorous and that for whatever reason God has blessed me with an energetic metabolism. Phew. That is a mercy and I am grateful.

7. I don’t hate football…and not just because of “when in Rome” yadda yadda.

6. I still have a house, and electricity, and heat. Not everyone in Jersey does. I am grateful.

5. For pie.

4. For all my random phobias, anxieties, and neurotic tendency to panic/overreact at the slightest provocation, cooking and baking do not scare me at all. This is a blessing at this time of year.

3. My spouse likes to wash dishes. He is more than a little OCD about washing dishes. Winning!

2. For Parades with Balloons…a delight that Never Gets Old.

1. Finally, for family, friends, doctors—sometimes it’s hard to tell where one group ends and another begins…

A year ago we were truly on the brink. At Thanksgiving we were days away from one of the worst days ever for us, and I think some part of me knew that something was brewing…and that time was only the beginning of some of the worst months ever for us. We’ve moved from shell-shocked to having some peace in this new normal (at least most days). We’ve made it through a really hard year. So for everyone who has stood with us, we are grateful.



Happy Thanksgiving, all! Now go chew something delicious. ; )

Twinkie, Twinkie, Little Snack, How I Hope you Will Come Back

So Hostess is no longer the company with the mostess, and the prime sustenance for the zombie apocalypse, aka the Twinkie, will no longer be sold. I’ve heard that a box of Twinkies was going for $24 the other day on Ebay. Silly memes depicting “Never Forget! 11/16/12” with a picture of a Twinkie are all over the internet. And, since it is a pretty well established fact that I am a very high functioning sugar addict, I guess it’s not much of a surprise that I have something to say about this. Yes, I actually have a cookbook in which the main ingredient in EVERY RECIPE is a Twinkie. No lie.




See? I am so truthful.

But in the interest of full disclosure: I almost never eat Twinkies. My youngest didn’t even know what a Twinkie was when I mentioned that they would be gone Forever.

Wow, what a GOOD MOM I must be, right? My kid doesn’t even KNOW what a Twinkie is! Oh, the Maternal Awesomeness, right?

No. I am cheap.

Twinkies are flipping expensive, like $3.59 for 8 cakes that my firstborn son could polish off in about 4 seconds, which would then allow time for him to run for his life before I fully process what he has done (just like the time I found the EMPTY box of Girl Scout Samoa cookies in his room. A jury would acquit me, I am sure…)

So I never buy Twinkies unless I need something cylindrical for a kid cake (we had funny Larry the Cucumbers once made out of Twinkies. So cute, and a boon for the cake-decorating-challenged). They are just too darn expensive.

Soooo—if I don’t eat Twinkies (or the little choco cupcakes with the white squiggle, or fruit pies, or the Yule log ones –yodels? Hohos? Or is that the wrong brand version?—or Devil Dogs (ok, THOSE are nasty))…if I don’t eat them, why do I care?

I am cheap, admittedly, but I am also relentlessly nostalgic. I think the more smote my life has become, the more I cherish those happy things from a long time ago.

When I was a kid, my dad used to buy us the Hostess Snowballs every so often when we were out running errands with him. My children quickly learned the important life lesson that my siblings and I all learned years ago: running errands of any kind with Grandpa (or dad, for me) equals treat of some kind. And I distinctly remember getting those marshmallow/coconut Snowball cakes with my dad. I don’t even LIKE marshmallow anymore (yuck), but I loved that treat, that part of time with my dad, that tantalizing sense of you were getting a treat that mom would NEVER say yes to (my mom is a hard core frugalista, and when I was young she was in a wheat germ cookies kind of season for a while). Snowballs (and sometimes fruit pies) were a forbidden fruit that Dad said yes to, without any begging, he would just OFFER IT FREELY! Woo!

Hostess treats were one way our dad showed us he loved us.  And we knew it.

And in college, when I had zero dollars at any given time, and often tried to ease my anxiety by not eating ever quite enough (bad choice, I know that now), I knew for under a buck I could get a Hostess apple fruit pie at the little convenience store on campus, and joy would be mine.

When a neighbor was diagnosed with cancer, we brought over melons and other fruit for her…and a box of Twinkies for her spouse, who was wracked with worry and the pressure of care-giving…and who loved Twinkies. They were medicine for HIM.

And yes, I made my second born some Larry the Cucumber Twinkies for a birthday several years back, likely before our world got smote…I don’t quite remember.

About a month ago our supermarket had Hostess stuff on sale (should I have been worried then? Maybe). I saw those fruit pies, a lovely 8 pack for $1.88 . HOW COULD I REFUSE?? 50% off! So I didn’t. I bought them for myself, and I hoarded them, and ate them when I was having a really bad day (I paced myself, otherwise they would have been gone in a week), and I just enjoyed Every. Last. Bite.

Finally I got down to the last one, and I ate one pie in the pack and planned to share the last one with my youngest, to introduce her to that special kind of “sharing mom’s secret treat” moment…but then she took too long putting shoes away or something, and I ate the last one.

Yeah, aren’t you glad you didn’t slap that Good Mom gold star on me back in the early paragraphs?

It was delicious. I don’t even really feel that guilty. You can give me the mangy Bad Mom ill-fitting t-shirt. It’s ok, I have a bunch already, it will fit right in.

But I do regret that I won’t be able to share that moment with my youngest. I know, I can create it with another treat or something, but treats with history mean more somehow, they are like Legacy Treats. You can’t create this kind of memory over a kale smoothie or a vitamin (heck, my only vitamin memory with my kids involved a series of panic-stricken calls to poison control. But that’s another post). I know, I fully acknowledge that this is silly and superficial and really I should be reading my children the classics and crafting celery boats for snack while listening to Mozart…

But nothing quite beats the delectable satisfaction of the occasional special treat that you know is purely a TREAT, not a life choice. Twinkies and the pantheon of Hostess Cakes have always been one of those things for me….

And you know, I never did get to make that Twinkie sushi recipe in my Twinkies Cookbook. Dang. Wonder how the prices on Ebay are today?

Jersey Lament

from Tuesday, 10/30

I type by the light of 2 battery “accent lights” from a 6 pack I got at Costco on Saturday, my back vaguely warmed by the sea of candles lighting the rest of my first floor. I cannot even upload this post, since we are without power, like most of New Jersey, and without power, I have no wireless internet…but I still have some computer battery left…so here I am.


Hurricane Sandy was, for us here on my street, a big storm punctuated by four hours of Really Scary --think 40 foot willow tree bending sideways in my yard as we heard pieces of our house peeling off. We lost power about 8 p.m. on October 29, just after the storm made landfall far to the south of us, near our beloved Cape May…where my onco kid conquered her exertion anxiety and climbed all 199 steps of the famous lighthouse just this past June. Within an hour of the power loss the winds picked up, the air sounded like a freight train even from the safety of our candlelit living room. From our somewhat protected back deck we could see the sky lighting up as transformers and wires danced explosively. The sound of it was something I have never really experienced before….


And we are miles and miles from the nearest coastline.
This morning I was afraid to look out the window…but in the breezy stillness and light rain I could see that the willow, while maimed once again, was still standing. We lost 2 gutters and 3 pieces of metal trim literally peeled off the roofline of our house (the longest twisted piece of metal is about 7 feet long)…but aside from that, and a carpet of branches, we were remarkably unscathed. Our entire neighborhood was remarkably unscathed, one dead tree had fallen in the space between 2 neighbors’ houses, but that was about it.


The three gourds someone lined up on our deck railing remained in a neat row this morning.

We are so lucky.

My spouse went out in search of coffee and a real bathroom (we have well water, so no power=no water, and only late this afternoon a neighbor with a generator hooked us up to their well so we can at least flush toilets and wash hands), and saw the extent of the damage near us…trees down everywhere. Wires down everywhere. Houses hidden by fallen trees. Poles and wires tangled and blocking roads. It’s a mess. We found out that a good friend who lives about a ½ mile away had significant damage to their home and property. My work (a school) had 14 trees down on the campus, and the streets around it are impassable because of downed utility poles. Friends around the country were texting me, but I could hardly get my texts to go out, the networks are overloaded here or something…

And then we managed to find some radio coverage of what was going on…

Our poor New Jersey got flattened.

Being disconnected from information NOW is so frustrating, so deeply frustrating. See, Jersey is a really small state. Freakishly small. So when news reports talk about Hoboken or Jersey City, we remember when we went to dinner there…or a reporter stands on a windy beach in Point Pleasant, my youngest remembers when Daddy got to chaperone her class trip to the aquarium there…or the camera pans to Atlantic City, I think of the fun I had with my sisters on my 40th birthday trip there, or how I went there with a friend on my first grown up vacation when I was barely 21. Seaside Heights? My first NF Endurance race. Lavallette? Where my parents vacation every summer. Newark? Great time at a Devils game, or where my girls got to see Taylor Swift in concert. Hey, that reporter is right by where we did the Polar Plunge for Camp Sunshine last February!


Jersey is small. If somewhere is on the news, unless it’s the far southwestern portion (that’s a tad less accessible to northern Jersey folks), we’ve been there, and generally had fun there, or we have friends who live there, or a neighbor works there….

Sigh. Sandy threw a smackdown on our neighborhood, both locally and our little state.

Getting specks of information, not being able to get cell phones to connect, not seeing what is going on…knowing that all of our favorite places are not just struggling but likely obliterated…it’s appalling and frustrating and scary.


I know we are tough here, it’s what Jersey is famous for, in some respects, that “fugghedaboudit” attitude that is so easily parodied. But under that, just like under any tough shell, is a deep love for this crazy little state. We accept being the punchline of jokes because we know the truth about the gems that lie just beyond the famous Turnpike. We know that we have invented all sorts of unique and impressive forms of corruption here, of double dealing, of stupid laws, of personality stereotypes, of insane home prices and cost of living, of food (ok, our food is awesome)…but beyond ALL of that ridiculousness, we love this place.


I know I will cry when I finally see the pictures, the pictures of this state I love, this state I call home. I don’t have it in me (in the dark of my powerless house) to burst into inspirational song about triumph over adversity…this one hurts. It does. The scope of this is so huge, and our state is so small, it’s our home, every corner of it is kind of in our backyard.

But we are Jersey proud. And we will get through this, even if it seems sooooooo clichéd to say that right now. So Sandy…we know you threw your best at us, and you knocked us down, and yeah, you flattened us…but are we going to just lick our wounds and hide in the Meadowlands with Jimmy Hoffa somewhere?

Fugghedaboudit.